A teddy bear with a birthmark

Posted by Monica Collins at

After I posted the pictures of the tatty teddy I had made, Lilianah's mom asked if I could make a bear with the port wine stain and surgery scar to resemble that of her daughter's as closely as possible.

Lilianah has Sturge-Weber Syndrome which is a condition that has a characteristic birthmark and neurological abnormalities. I received a few different photos and so transferred the shape of the stain onto the teddy bear's face.

Lilianah Bear with a Sturge-Weber syndrome birthmark Lilianah Bear with a Hemispherectomy scar

The joy that Lilianah experienced when seeing a teddy bear look alike can be seen very clearly in this picture her mom posted on my Facebook page.

Was saving this for her birthday later in the month but as soon as she saw the box outside she wanted it, I couldn't resist


Mom also left a great review on my testimonial page.

If you are interested in a custom bear like this, please contact me to discuss. Please do not leave a comment here, I don't get notified of comments and so I will not see it in a timely manner.

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  • Hi!! My son has a pws birthmark on the right side of his face, and the first time I saw this I knew I had to find out where I can order one for him. I’d really like to give this as one of his Christmas gifts! Pls email me! Thx!! Karla/Texas

    Karla on
  • Hi I have a daughter with sturge weber and has a port wine stain on her forehead. When I seen this bear I said I have to get one for my little girl. Can you let me know how I would order this? Thank you

    Vicky Davis on
  • My granddaughter has pws on her left side face head and ear and i would live to get her one made x

    Anita Fosher on
  • Where can I order a bear. I have a daughter who is 27 and would love to have such a special bear.

    susan on
  • Can I order one from you???
    And I have a blog about birthmarks I would love to link you to it?

    RAchel on

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